Power In Numbers

HAEVN is a space created with and for people living with heredity angioedema (HAE). Here, every unique experience matters. Whether you're sharing your story, hearing the experiences of others, or using the Angioedema Control Test to monitor your HAE, HAEVN exists to remind you that there’s power in numbers.

a community of over

800

people and growing

Join the community
HAEVN Photo Wall

Not all individuals pictured are living with HAE.

Welcome to HAEVN

There’s plenty to explore. What are you looking to do today?

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Test my HAE control

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Listen to discussions about HAE

Listen to HAEVN Voices
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Be inspired by others with HAE

Try HAEVN Spark